Palliative Care and End of life

Here you can find training and useful resources to support people with a learning disability who are palliative or at the end of life

Margaret’s story

Understanding the patient experience – Margaret’s story

This film and resource pack aim to provide education and increase awareness, allowing people to think about their individual rolls within health or social care and how and when they offer support to individuals.

We are immensely grateful to Margaret for sharing her story and giving us the opportunity to stop and think about how we can better support and work with people with a learning disability.

This film and resource pack are aimed at people working within: primary and secondary care, social care and third sector organisations who support individuals with a learning disability.

If you are viewing the film independently we ask you to look at the learning points within the Margaret’s story resource pack. The resource pack also includes a session plan, so the film can be shared as part of a team meeting or education event.

If you would like to receive a training session using Margaret’s story to look at how we can give the best quality care contact england.learningdisabilitynetwork@nhs.net

To access a copy of the resource pack, please click here.

Margaret’s story: Videos

An 11 minute video where Margaret tells her story can be viewed below: