Quality of Life Patient Survey

Cancer Quality of Life Patient Survey

Quality of life means different things to different people, but it matters to everyone. More people are surviving cancer than ever before but living with cancer, and the effects of its treatment, can have a negative impact on people’s physical, emotional and social wellbeing.

NHS England and NHS Improvement and NHS Digital have launched a nationwide Cancer Quality of Life Survey to help us understand what matters to patients.

The survey was launched in September 2020 for a small pilot of breast, prostate and colorectal cancer patients, and has since been rolled out to all patients diagnosed with breast, prostate or colorectal cancer in England around 18 months after their diagnosis.

All cancer patients will be invited to complete the survey from October 2021. The information collected from the survey will help us to work out how best to support people living with and beyond cancer.

This is an ambitious programme with a scale and depth that isn’t being matched anywhere else in the world. Although patient-reported outcome measures (PROMs) that focus on quality of life are in use in parts of the NHS, and in clinical trials round the world, the potential for PROMs to improve care and outcomes for people affected by cancer has not yet been realised.

Only by monitoring