Privacy Notice

How do we use your data?

Participants assessed at their Lung Health Check as being at a greater risk of developing lung cancer will be offered a low dose CT scan.

Around 2 out of every 100 patients who have a CT scan will be found to have a lung cancer. Most of these cancers will be found at an earlier stage than they would otherwise have been found, meaning that the NHS will be able to offer more treatments, such as curative surgery, which will save lives.

NHS England is conducting a national evaluation to understand the impacts and economics of the programme. The evaluation is expected to demonstrate impacts on patient health outcomes, experience and wider health inequalities. Findings from the evaluation will ensure an evidence-based approach to the longer-term strategy for wider roll out of a targeted lung cancer screening programme.

This approach involves an analysis of data collected by the programme, and information recorded in interviews with patients and staff about their experiences.

Ipsos Mori, together with the Strategy Unit at the Midlands and Lancashire Commissioning Support Unit (CSU), which is part of NHS England, have been appointed jointly as the national evaluation partner.

NHS England’s Privacy Notice for the TLHC Programme can be found here.

Sources of data and categories of personal data

The North East and North Cumbria Integrated Care System (ICS) and the Northern Cancer Alliance are co-ordinating Lung Health Check services in the North East and North Cumbria, acting for their constituent GP practices.

Patients will be invited to their Lung Health Check by the service provider commissioned by their local ICS place to deliver the Lung Health Checks, before being referred into secondary care for further investigations and treatment (where necessary). This service provider could be an NHS Hospital Trust or a provider external to the NHS, depending on the area. The service providers are as follows across the North East and North Cumbria:

  • Newcastle and Gateshead – The Newcastle-upon-Tyne NHS Foundation Trust
  • Tees Valley – InHealth
  • South Tyneside and Sunderland – South Tyneside and Sunderland NHS Foundation Trust
  • North Cumbria – To be confirmed
  • Northumberland – To be confirmed
  • North Tyneside – To be confirmed
  • County Durham – To be confirmed

Personal data about patients is collected across the pathway to enable the delivery of the TLHC service locally. The national evaluation partner receives a data set from the providers for the purpose of evaluation. Patients will not be identifiable from this dataset.

The evaluation partner may also collect information about the experiences of participants and staff, facilitated by the service provider(s). Information will be recorded in a way to ensure that individuals cannot be identified.