Personalised Stratified Follow Up (PSFU)
There is currently little evidence that routine follow-up identifies disease recurrence yet it is costly and time consuming. Therefore national guidance encourages stratification of patients onto follow up pathways based on risk.
The NHS Operational and Planning Guidance places requirements on Cancer Alliances to roll out stratified follow up pathways for breast, colorectal, gynaecological and prostate pathways.
Patients should be stratified for follow up by their clinician following initial treatment based on clinical need. This ranges from professional led follow up for those to higher risk of disease recurrence to self management for low risk patients who following treatment will no longer have routine follow up appointments. Instead these patients are educated to self-manage their condition with back up from the clinical team and access to remote monitoring and re-entry pathways. A needs assessment is carried out and an individual care plan drawn up to address the needs of these individuals aimed at minimising risk and support to manage on-going conditions. .
The Cancer Alliance agreed a stratified follow-up pathway model can be seen below:
Gynaecology oncology stratified follow up clinical guidelines
The following guidelines have been developed in-line with national guidelines for stratified follow up and the treatment of patients with gynaecology cancer of ovarian or endometrial origin. This pathway is being offered to patients who meet the criteria by all Trusts across the Alliance.
Breast Stratified Follow Up
In the North East and North Cumbria there are a number of Trusts who already offer this service, with the remainder working towards implementation by March 2019. The Cancer Alliance have approved a regional protocol based on one developed by nurses at Gateshead Trust.
There is currently one Trust offering this service and another two looking to develop it. There are existing shared care agreements in place to enable patients to have monitoring undertaken in primary care so we are looking to build on this.
Some of our sites are looking to implement stratified follow up for patients at low risk of recurrence. A protocol based on the NHS England best practice documentation attached below is being debated with the Expert Advisory Group
Digital Remote Monitoring (DRM)
Digital remote monitoring is the technology that enables specialists to schedule and monitor surveillance tests for patients who have completed treatment for cancer, without the need for a face to face outpatient appointment to convey the result. Its primary role is to support patients treated with curative intent that are suitable for a supported self-managed pathway.
This could be communicated via an online patient portal and the Northern Cancer Alliance is working with our regional digital leaders to identify the best solutions.